Alicia McPeters, President
Hello there! My name is Alicia McPeters, and I am the President and one of the Founders of The Heart Hero Project. The little boy on this page is mine. His name is Liam, and he was born in November with HLHS. Starting this charity was something I have wanted to do since the day he was born. When we found out about his condition, noone I knew had ever even heard of it. Trying to find information on the internet was absolutely terrifying, filled with outdated statistics and dry medical studies. The overall lack of information available was disheartening. I know how far the medical field has come to increase the survival rate of these babies, and I know there is so much being done today. I can’t wait to see what the future brings. With this organization, I hope to increase awareness of HLHS, so it will get some front page attention, and hopefully in return, obtain more opportunities for hospitals and doctors get the funding they need to progress in their research to find a cause and a cure. I want to provide the support that will allow these families to get through the hard times, and for these children to have full and meaningful lives. I also want The Heart Hero Project to be somewhat of a support system for families, so that no one feels alone, or that there isn’t anyone who can relate to how they feel. I have big dreams for this organization, and I hope that everyone involved now and moving forward will become just as passionate as I am in helping and giving back. Thank you all in advance for any and all support!
Alyssa Rosenlicht, Secretary
Hi! My name is Alyssa Rosenlicht and I’m the secretary here at the HHP. Co-founder Alicia and I have been best friends since high school. We grew up together, got married together, even live on the same street. We’re sisters by choice and best friends for life. So, when she called me on June 30th, 2017 to tell me the news about Liam, I pretty much resigned myself to the notion that her fight was my fight and I was as much dedicated to Liam’s health and happiness as she was.
I’m a doer - I am a fixer. I couldn’t figure out how to fix Liam’s heart, so I decided my role was to figure out how to support Alicia in the most beneficial ways possible. But the information available was limiting. What do HLHS families need, what special products will Liam need? How can help make the transition to home easier? What makes heart babies different than other babies and what should I be planning for?
The entire research process made me realize something invaluable. While HLH mommas are busy fighting for their baby’s life, the support system around the momma must do the same: fight for her life. I learned that the best things you can do for HLHS families are simple things: cleaning the house, doing the laundry, fresh food in the fridge and a warm meal on the table.
It’s this knowledge and experience that I bring to the group. I have a unique perspective Alicia may not have: how to support HLHS families in ways they may not always see, but will always appreciate. My role is to assist the support system around the hurting family with valuable information, tips, and a good dose of laughter in these difficult times.